Instrumentos de evaluación de la calidad de vida relacionada con la salud en niños y adolescentes con asma
Instruments for measuring health-related quality of life in children and adolescents with asthma
X. Badia Llacha,
, A. Benavides Ruizb, L. Rajmil Rajmilb
Autor para correspondencia
xbadia@cochrane.es
Correspondencia: Outcomes Research Unit. Servicio de Epidemiología Clínica y Salud Pública. Hospital de la Santa Creu i Sant Pau. Barcelona. Casa de Convalecència. Fundació Doctor Robert. Antoni M.a Claret, 171. 08041 Barcelona.
Correspondencia: Outcomes Research Unit. Servicio de Epidemiología Clínica y Salud Pública. Hospital de la Santa Creu i Sant Pau. Barcelona. Casa de Convalecència. Fundació Doctor Robert. Antoni M.a Claret, 171. 08041 Barcelona.
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Jaimovich" "autores" => array:1 [ 0 => array:2 [ "nombre" => "D.G." "apellidos" => "Jaimovich" ] ] ] ] ] "idiomaDefecto" => "es" "EPUB" => "https://multimedia.elsevier.es/PublicationsMultimediaV1/item/epub/S1695403301775157?idApp=UINPBA00005H" "url" => "/16954033/0000005400000003/v1_201307051543/S1695403301775157/v1_201307051543/es/main.assets" ] "es" => array:14 [ "idiomaDefecto" => true "titulo" => "Instrumentos de evaluación de la calidad de vida relacionada con la salud en niños y adolescentes con asma" "tieneTextoCompleto" => 0 "paginas" => array:1 [ 0 => array:2 [ "paginaInicial" => "213" "paginaFinal" => "221" ] ] "autores" => array:1 [ 0 => array:4 [ "autoresLista" => "X. Badia Llach, A. Benavides Ruiz, L. Rajmil Rajmil" "autores" => array:3 [ 0 => array:4 [ "nombre" => "X." "apellidos" => "Badia Llach" "email" => array:1 [ 0 => "xbadia@cochrane.es" ] "referencia" => array:2 [ 0 => array:2 [ "etiqueta" => "<span class="elsevierStyleSup">a</span>" "identificador" => "aff0005" ] 1 => array:2 [ "etiqueta" => "<span class="elsevierStyleSup">*</span>" "identificador" => "cor0005" ] ] ] 1 => array:3 [ "nombre" => "A." "apellidos" => "Benavides Ruiz" "referencia" => array:1 [ 0 => array:2 [ "etiqueta" => "<span class="elsevierStyleSup">b</span>" "identificador" => "aff0010" ] ] ] 2 => array:3 [ "nombre" => "L." "apellidos" => "Rajmil Rajmil" "referencia" => array:1 [ 0 => array:2 [ "etiqueta" => "<span class="elsevierStyleSup">b</span>" "identificador" => "aff0010" ] ] ] ] "afiliaciones" => array:2 [ 0 => array:3 [ "entidad" => "Outcomes Research Unit. Servicio de Epidemiología Clínica y Salud Pública. Hospital de la Santa Creu i Sant Pau. Barcelona" "etiqueta" => "<span class="elsevierStyleSup">a</span>" "identificador" => "aff0005" ] 1 => array:3 [ "entidad" => "Institut Universitari de Salut Pública de Catalunya" "etiqueta" => "<span class="elsevierStyleSup">b</span>" "identificador" => "aff0010" ] ] "correspondencia" => array:1 [ 0 => array:3 [ "identificador" => "cor0005" "etiqueta" => "*" "correspondencia" => "Correspondencia: Outcomes Research Unit. Servicio de Epidemiología Clínica y Salud Pública. Hospital de la Santa Creu i Sant Pau. Barcelona. Casa de Convalecència. Fundació Doctor Robert. Antoni M.<span class="elsevierStyleSup">a</span> Claret, 171. 08041 Barcelona." ] ] ] ] "titulosAlternativos" => array:1 [ "en" => array:1 [ "titulo" => "Instruments for measuring health-related quality of life in children and adolescents with asthma" ] ] "pdfFichero" => "main.pdf" "tienePdf" => true "fechaRecibido" => "1999-09-30" "fechaAceptado" => "2000-11-30" "PalabrasClave" => array:2 [ "es" => array:1 [ 0 => array:4 [ "clase" => "keyword" "titulo" => "Palabras clave" "identificador" => "xpalclavsec186606" "palabras" => array:4 [ 0 => "Calidad de vida" 1 => "Asma" 2 => "Cuestionario" 3 => "Niños y adolescentes" ] ] ] "en" => array:1 [ 0 => array:4 [ "clase" => "keyword" "titulo" => "Key words" "identificador" => "xpalclavsec186605" "palabras" => array:4 [ 0 => "Quality of life" 1 => "Asthma" 2 => "Questionnaire" 3 => "Children and adolescents" ] ] ] ] "tieneResumen" => true "resumen" => array:2 [ "es" => array:1 [ "resumen" => "<span class="elsevierStyleSectionTitle">Objetivos</span><p id="spar0005" class="elsevierStyleSimplePara elsevierViewall">Los instrumentos de evaluación de la calidad de vida relacionada con la salud (CVRS) están demostrando ser útiles para valorar de una forma más integral la enfermedad y su repercusión en la vida diaria del paciente. En esta revisión se pretende describir los instrumentos disponibles en estos momentos para la valoración de la CVRS en niños y adolescentes con asma.</p> <span class="elsevierStyleSectionTitle">Métodos</span><p id="spar0010" class="elsevierStyleSimplePara elsevierViewall">Se ha revisado la base documental MEDLINE desde 1980 hasta 2000, así como la página web de la American Thoracic Society y la revista Quality of Life Research. Se han seleccionado aquellos trabajos que incluían instrumentos que medían la CVRS en niños con asma y que cumpliesen con los criterios de selección de multidimensionalidad, puntuación mediante escalas ordinales estandarizadas y que evaluasen las propiedades psicométricas.</p> <span class="elsevierStyleSectionTitle">Resultados</span><p id="spar0015" class="elsevierStyleSimplePara elsevierViewall">De los 21 instrumentos inicialmente identificados se excluyeron siete por no cumplir alguno de los criterios de selección, quedando finalmente en la revisión 14 instrumentos, 6 genéricos para niños (CHQ, KINDL, PedsQL, FS-IIR, RAND y CHIP-AE) y ocho específicos para niños con asma (SSES, ASDQ, AMA, CAQ, LAQCA, PACQLQ, PAQLQ y APBC). Los instrumentos genéricos miden las cuatro dimensiones básicas (síntomas, función física, emocional y social), mientras que la mayoría de los específicos están enfocados más en la sintomatología y la función física. La fiabilidad (alfa de Cronbach) y la validez de constructo son las propiedades psicométricas mejor medidas en todos los cuestionarios. La sensibilidad al cambio es la propiedad menos valorada en general, y únicamente han demostrado ser sensibles a los cambios tres instrumentos específicos (LAQCQ, PACQLQ y PAQLQ). Todos los instrumentos tienen la opción de ser autocumplimentados. Sólo hay dos genéricos (FS-IIR y RAND) validados en la cultura española. En la actualidad están en proceso de validación dos genéricos (PedsQL y CHIP-AE) y dos específicos (PACQLQ y PAQLQ)</p> <span class="elsevierStyleSectionTitle">Conclusión</span><p id="spar0020" class="elsevierStyleSimplePara elsevierViewall">Actualmente la disponibilidad de instrumentos que midan la CVRS en niños con asma en nuestro medio es limitada. En breve se dispondrá de la versión validada en nuestra cultura del PedsQL (genérico) y del PAQLQ (específico), que son dos instrumentos que ya han demostrado en otros países ser útiles para medir la CVRS en niños asmáticos.</p>" ] "en" => array:1 [ "resumen" => "<span class="elsevierStyleSectionTitle">Objectives</span><p id="spar0030" class="elsevierStyleSimplePara elsevierViewall">Measures of health-related quality of life (HRQOL) are proving to be useful in providing a comprehensive evaluation of illness and its effects on patient's daily lives. The aim of this review is to describe HRQOL instruments that are currently available to measure the HRQOL in children and adolescents with asthma.</p> <span class="elsevierStyleSectionTitle">Methods</span><p id="spar0035" class="elsevierStyleSimplePara elsevierViewall">The MEDLINE database from 1980 to 2000 was reviewed, as well as the website of the American Thoracic Society and the Quality of Life Research journal. Studies that included instruments measuring HRQOL in children with asthma were included as long as the instruments included met the selection criteria of multidimensionality, scoring was through standardized ordinal scales and psychometric properties were evaluated.</p> <span class="elsevierStyleSectionTitle">Results</span><p id="spar0040" class="elsevierStyleSimplePara elsevierViewall">Of the 21 instruments initially identified 7 were excluded because they did not meet one or more of the selection criteria. Fourteen instruments were included in the final review, 6 were generic instruments for children (CHQ, KINDL, PedsQL, FS-IIR, RAND and CHIP-AE) and eight were specific to children with asthma (SSES, ASDQ, AMA, CAQ, LAQCA, PACQLQ, PAQLQ and APBC). The generic instruments measured the four basic aspects of HRQOL (symptoms, physical, mental and social functioning), whilst the majority of the specific instruments focused more closely on symptom measurement and physical functioning. Reliability (Cronbach's alpha) and construct validity were the most widely tested psychometric properties. In general, sensitivity to change was the least widely tested property and only three disease-specific instruments were sensitive to change (LAQCQ, PACQLQ and PAQLQ). All the instruments could be self-administered. Only two of the generic instruments (FS-IIR and RAND) had been validated for use in Spain. At present two more generic instruments (PedsQL and CHIP-AE) and two specific instruments (PACQLQ and PAQLQ) are currently being validated.</p> <span class="elsevierStyleSectionTitle">Conclusion</span><p id="spar0045" class="elsevierStyleSimplePara elsevierViewall">Theavailability of instruments to measure the HRQOL of children with asthma in Spain is currently limited. Validated versions of the PedsQL (generic) and PAQLQ (specific) instruments, both of which have been demonstrated to be useful in other countries, should shortly be available to measure the HRQOL of children with asthma in Spain</p>" ] ] "bibliografia" => array:2 [ "titulo" => "Bibliografía" "seccion" => array:1 [ 0 => array:2 [ "identificador" => "bibs0005" "bibliografiaReferencia" => array:38 [ 0 => array:3 [ "identificador" => "bib0005" "etiqueta" => "1." "referencia" => array:1 [ 0 => array:2 [ "contribucion" => array:1 [ 0 => array:2 [ "titulo" => "Epidemiología y cronología de las enfermedades alérgicas y sus factores de riesgo" "autores" => array:1 [ 0 => array:2 [ "etal" => false "autores" => array:4 [ 0 => "J.L. Eseverri" 1 => "M. Cozzo" 2 => "A.M. Marin" 3 => "J. 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| año/Mes | Html | Total | |
|---|---|---|---|
| 2024 Noviembre | 9 | 9 | 18 |
| 2024 Octubre | 60 | 95 | 155 |
| 2024 Septiembre | 41 | 56 | 97 |
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| 2024 Mayo | 54 | 46 | 100 |
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| 2024 Marzo | 33 | 57 | 90 |
| 2024 Febrero | 48 | 45 | 93 |
| 2024 Enero | 20 | 43 | 63 |
| 2023 Diciembre | 33 | 42 | 75 |
| 2023 Noviembre | 26 | 31 | 57 |
| 2023 Octubre | 34 | 47 | 81 |
| 2023 Septiembre | 20 | 39 | 59 |
| 2023 Agosto | 32 | 28 | 60 |
| 2023 Julio | 19 | 48 | 67 |
| 2023 Junio | 48 | 47 | 95 |
| 2023 Mayo | 32 | 48 | 80 |
| 2023 Abril | 17 | 29 | 46 |
| 2023 Marzo | 43 | 74 | 117 |
| 2023 Febrero | 20 | 32 | 52 |
| 2023 Enero | 25 | 36 | 61 |
| 2022 Diciembre | 42 | 31 | 73 |
| 2022 Noviembre | 33 | 38 | 71 |
| 2022 Octubre | 32 | 52 | 84 |
| 2022 Septiembre | 29 | 38 | 67 |
| 2022 Agosto | 52 | 59 | 111 |
| 2022 Julio | 56 | 53 | 109 |
| 2022 Junio | 26 | 43 | 69 |
| 2022 Mayo | 24 | 40 | 64 |
| 2022 Abril | 32 | 49 | 81 |
| 2022 Marzo | 31 | 71 | 102 |
| 2022 Febrero | 19 | 32 | 51 |
| 2022 Enero | 30 | 51 | 81 |
| 2021 Diciembre | 18 | 47 | 65 |
| 2021 Noviembre | 32 | 54 | 86 |
| 2021 Octubre | 36 | 81 | 117 |
| 2021 Septiembre | 24 | 73 | 97 |
| 2021 Agosto | 20 | 40 | 60 |
| 2021 Julio | 52 | 60 | 112 |
| 2021 Junio | 28 | 60 | 88 |
| 2021 Mayo | 40 | 46 | 86 |
| 2021 Abril | 63 | 126 | 189 |
| 2021 Marzo | 71 | 85 | 156 |
| 2021 Febrero | 58 | 53 | 111 |
| 2021 Enero | 36 | 61 | 97 |
| 2020 Diciembre | 51 | 47 | 98 |
| 2020 Noviembre | 29 | 42 | 71 |
| 2020 Octubre | 27 | 28 | 55 |
| 2020 Septiembre | 30 | 16 | 46 |
| 2020 Agosto | 22 | 38 | 60 |
| 2020 Julio | 37 | 21 | 58 |
| 2020 Junio | 22 | 23 | 45 |
| 2020 Mayo | 20 | 20 | 40 |
| 2020 Abril | 33 | 21 | 54 |
| 2020 Marzo | 19 | 15 | 34 |
| 2020 Febrero | 26 | 24 | 50 |
| 2020 Enero | 28 | 28 | 56 |
| 2019 Diciembre | 47 | 49 | 96 |
| 2019 Noviembre | 20 | 28 | 48 |
| 2019 Octubre | 15 | 30 | 45 |
| 2019 Septiembre | 33 | 35 | 68 |
| 2019 Agosto | 40 | 25 | 65 |
| 2019 Julio | 26 | 31 | 57 |
| 2019 Junio | 41 | 54 | 95 |
| 2019 Mayo | 48 | 84 | 132 |
| 2019 Abril | 22 | 59 | 81 |
| 2019 Marzo | 28 | 44 | 72 |
| 2019 Febrero | 19 | 26 | 45 |
| 2019 Enero | 20 | 23 | 43 |
| 2018 Diciembre | 19 | 28 | 47 |
| 2018 Noviembre | 28 | 47 | 75 |
| 2018 Octubre | 47 | 26 | 73 |
| 2018 Septiembre | 21 | 9 | 30 |
| 2018 Agosto | 1 | 0 | 1 |
| 2018 Julio | 2 | 0 | 2 |
| 2018 Mayo | 4 | 0 | 4 |
| 2018 Abril | 14 | 0 | 14 |
| 2018 Marzo | 5 | 0 | 5 |
| 2018 Febrero | 19 | 1 | 20 |
| 2018 Enero | 8 | 1 | 9 |
| 2017 Diciembre | 6 | 0 | 6 |
| 2017 Noviembre | 21 | 0 | 21 |
| 2017 Octubre | 15 | 0 | 15 |
| 2017 Septiembre | 14 | 0 | 14 |
| 2017 Agosto | 6 | 0 | 6 |
| 2017 Julio | 12 | 3 | 15 |
| 2017 Junio | 32 | 34 | 66 |
| 2017 Mayo | 30 | 42 | 72 |
| 2017 Abril | 26 | 36 | 62 |
| 2017 Marzo | 13 | 40 | 53 |
| 2017 Febrero | 12 | 30 | 42 |
| 2017 Enero | 13 | 18 | 31 |
| 2016 Diciembre | 30 | 17 | 47 |
| 2016 Noviembre | 46 | 14 | 60 |
| 2016 Octubre | 36 | 16 | 52 |
| 2016 Septiembre | 32 | 16 | 48 |
| 2016 Agosto | 32 | 9 | 41 |
| 2016 Julio | 15 | 7 | 22 |
| 2016 Abril | 1 | 0 | 1 |
| 2016 Marzo | 4 | 0 | 4 |
| 2016 Febrero | 1 | 0 | 1 |
| 2016 Enero | 1 | 0 | 1 |
| 2015 Diciembre | 2 | 0 | 2 |
| 2015 Noviembre | 4 | 0 | 4 |
| 2015 Octubre | 4 | 0 | 4 |
| 2015 Septiembre | 3 | 12 | 15 |
| 2015 Agosto | 4 | 0 | 4 |
| 2015 Julio | 11 | 0 | 11 |
| 2015 Junio | 8 | 5 | 13 |
| 2015 Mayo | 7 | 9 | 16 |
| 2015 Abril | 20 | 11 | 31 |
| 2015 Marzo | 11 | 0 | 11 |
| 2015 Febrero | 9 | 11 | 20 |
| 2015 Enero | 19 | 0 | 19 |
| 2014 Diciembre | 31 | 2 | 33 |
| 2014 Noviembre | 26 | 1 | 27 |
| 2014 Octubre | 31 | 1 | 32 |
| 2014 Septiembre | 39 | 3 | 42 |
| 2014 Agosto | 41 | 2 | 43 |
| 2014 Julio | 59 | 3 | 62 |
| 2014 Junio | 73 | 0 | 73 |
| 2014 Mayo | 96 | 4 | 100 |
| 2014 Abril | 73 | 4 | 77 |
| 2014 Marzo | 81 | 6 | 87 |
| 2014 Febrero | 57 | 10 | 67 |
| 2014 Enero | 62 | 8 | 70 |
| 2013 Diciembre | 55 | 6 | 61 |
| 2013 Noviembre | 61 | 8 | 69 |
| 2013 Octubre | 76 | 14 | 90 |
| 2013 Septiembre | 69 | 20 | 89 |
| 2013 Agosto | 59 | 18 | 77 |
| 2013 Julio | 53 | 6 | 59 |
| 2013 Junio | 4 | 1 | 5 |
| 2013 Mayo | 3 | 5 | 8 |
| 2013 Abril | 6 | 4 | 10 |
| 2013 Marzo | 22 | 4 | 26 |
| 2013 Febrero | 6 | 5 | 11 |
| 2013 Enero | 12 | 5 | 17 |
| 2012 Diciembre | 6 | 4 | 10 |
| 2012 Noviembre | 4 | 1 | 5 |
| 2012 Octubre | 4 | 1 | 5 |
| 2012 Septiembre | 6 | 1 | 7 |
| 2001 Marzo | 3800 | 0 | 3800 |
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