Special Article
Participant-funded clinical trials on rare diseases
Ensayos clínicos en enfermedades raras financiados por los participantes
Rafael Dal-Réa,
, Francesc Palaub,c,d,e, Encarna Guillén-Navarroe,f, Carmen Ayusoe,g
Corresponding author
a Unidad de Epidemiología, Instituto de Investigación Sanitaria, Hospital Universitario Fundación Jiménez Díaz, IIS-UAM, Universidad Autónoma de Madrid, Madrid, Spain
b Servicio de Medicina Genética y Molecular, Instituto Pediátrico de Enfermedades Raras (IPER), Hospital Sant Joan de Déu, Institut de Recerca Sant Joan de Déu, Esplugues de Llobregat, Barcelona, Spain
c Institut Clínic de Medicina i Dermatologia, Hospital Clínic, Barcelona, Spain
d Unidad de Pediatría, Facultat de Medicina i Ciències de la Salut, Universitat de Barcelona, Barcelona, Spain
e CIBER de Enfermedades Raras (CIBERER), ISCIII, Madrid, Spain
f Sección de Genética Médica, Servicio de Pediatría, Hospital Clínico Universitario Virgen de la Arrixaca, Instituto Murciano de Investigación Biosanitaria (IMIB-Arrixaca), Facultad de Medicina, Universidad de Murcia, Murcia, Spain
g Departamento de Genética y Genómica, Instituto de Investigación Sanitaria, Hospital Universitario Fundación Jiménez Díaz, IIS-UAM, Universidad Autónoma de Madrid, Madrid, Spain
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