ArticleThe Initiative for Pediatric Palliative Care: An Interdisciplinary Educational Approach for Healthcare Professionals
Section snippets
Values and Goals of the IPPC Curriculum
A number of core values have shaped the development of the curriculum. These values include maintaining a family-centered focus, recognizing that a child's well-being is inextricably linked to the strengths and resources of the family, respecting diversity, avoiding cultural stereotypes and promoting what has been called cultural humility (Tervalon & Murray-Garcia, 1998), and enhancing attention to symptom management, psychosocial needs, spirituality, and the meaning that illness and the threat
IPPC Development Process
The project began with needs assessment research, which included a survey of approximately 800 nurses and physicians who care for seriously ill children in seven geographically diverse children's hospitals (Solomon et al., 2000) and interviews with clinicians and with parents who had experienced the loss of a child (Hardart et al., 2002, Heller & Solomon, 2005) drawn from three of the seven hospitals that participated in the survey. In addition, the principal investigator of the project
IPPC's Educational Philosophy and Pedagogy
The IPPC's educational approach involves a distinctive pedagogy, combining the scientific rigor of its content with attention to the psychosocial needs of a group of adult learners who provide care to highly vulnerable children and families in busy and easily distractible environments. Unlike traditional medical and nursing education, the curriculum focuses not only on the content that professional caregivers must master but also on the psychological, organizational, and logistical barriers
Building Capacity in Pediatric Palliative Care: The Need for Faculty and Leadership Development
On November 6 and 7, 2003, the IPPC held its first national symposium at the New York Academy of Medicine in New York City. The conference was attended by 500 nurses, physicians, social workers, psychologists, chaplains, child life specialists, administrators, and researchers from across the United States, as well as by many international participants. Dr. Richard Behrman, chair of the Institute of Medicine's Committee on Improving Palliative and End-of-Life Care for Children and Their
Acknowledgments
We wish to thank the following funders of the Initiative for Pediatric Palliative Care for their generous support: The Nathan Cummings Foundation, the Open Society Institute's Project on Death in America, the Argosy Foundation, and the Kohlberg Foundation.
In addition to Browning and Solomon, the IPPC investigator team includes the following: Deborah Dokken, MPA, Family Advocate and Consultant, Alan Fleischman, MD, Senior Advisor of the New York Academy of Medicine, Karen S. Heller, PhD,
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